As scientists and healthcare providers go through day-to-day patient care or organize complex clinical trials, an extensive database of patient data in amassed. The data collected could be easily deidentified and used to further clinical understanding or to develop clinical tools that would allow earlier diagnosis, improved disease monitoring, or more tailored treatment.
Although we value a culture of collaboration and have a shared goal of improving patient care, this type of data is usually highly guarded by the individuals and institutions, and/or only shared when research groups are willing to pay a premium. Additionally, the data collected is often unorganized and even lost track of.
What are most critical considerations and barriers involved in data sharing in this increasingly digital and collaborative world? Do you see a future of more open and collaborative research involving databases of patient information?
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