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Authors
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Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fanAlta Charo, JD
Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fanBioethicist and science policy specialist; Star Trek, poker and Jane Austen fan
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Experts
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Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of MedicineInsoo Hyun, PhD
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of MedicineAssociate Professor of Bioethics and Philosophy at Case Western Reserve University School of Medicine
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Professor of Office of Health and Safety at Hokkaido UniversityTetsuya Ishii, PhD
Professor of Office of Health and Safety at Hokkaido UniversityProfessor of Office of Health and Safety at Hokkaido University
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Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest UniversityAna Iltis, PhD
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest UniversityDirector, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest University
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Canada Research Chair in Neuroethics; President International Neuroethics SocietyJudy Illes, PhD
Canada Research Chair in Neuroethics; President International Neuroethics SocietyCanada Research Chair in Neuroethics; President International Neuroethics Society
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Director, South Asian Studies Program, Associate Professor of Sociology at University of MissouriAmit Prasad, PhD
Director, South Asian Studies Program, Associate Professor of Sociology at University of MissouriDirector, South Asian Studies Program, Associate Professor of Sociology at University of Missouri
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Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of MedicinePaul Knoepfler, PhD
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of MedicineAssociate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of Medicine
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Research Director, Canadian Institute for Genomics and SocietyKalina Kamenova, PhD
Research Director, Canadian Institute for Genomics and SocietyResearch Director, Canadian Institute for Genomics and Society
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Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical CenterJaime Imitola, MD
Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical CenterDirector, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical Center
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Physician and Medical Educator, NUI Galway, IrelandGerard Flaherty, MD
Physician and Medical Educator, NUI Galway, IrelandPhysician and Medical Educator, NUI Galway, Ireland
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Lead Moderators
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Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.Omar Abudayyeh
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.
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Moderators
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Fourth Year Biology Student at Trent UniversityElyse Wakeford
Fourth Year Biology Student at Trent UniversityFourth Year Biology Student at Trent University
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Student at Trent UniversityGordon Martin
Student at Trent UniversityStudent at Trent University
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Trent University Philosophy Major
About the Discussion
@NEJM Ask the Authors & Experts: On the Road (to a Cure?): Stem Cell Tourism and Lessons for Gene Editing"
PERSPECTIVE
On the Road (to a Cure?) — Stem-Cell Tourism and Lessons for Gene Editing
R. Alta Charo, J.D..
N Engl J Med 2016; 374: | February 10, 2016 | DOI: 10.1056/NEJMp1600891
BACKGROUND
In 2011, football quarterback Peyton Manning went on the road to seek out stem-cell “treatment” for his neck. He wasn’t alone: many high-profile athletes and desperate (but less famous) patients left the United States seeking interventions available in countries with less rigorous regulation. They didn’t necessarily know what kind of cells they were getting, whether there was any evidence the intervention worked, or whether anyone understood the risks they were taking. So why did they do it?
Given the stream of stories about amazing potential and early breakthroughs in laboratory and animal models, gene editing may trigger the next wave of medical tourism. We should take steps now to guard against future gene-editing tourism by developing professional norms, fostering collaboration among national regulatory bodies, partnering with patient advocacy groups to develop accurate, credible information sources, and looking for opportunities to devise responsible research protocols and patient monitoring measures.
Originally Appeared in The New England Journal of Medicine on February 10, 2016.
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Authors
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Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fanAlta Charo, JD
Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fan
Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fan
-
Experts
-
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of MedicineInsoo Hyun, PhD
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of Medicine
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of Medicine
-
Professor of Office of Health and Safety at Hokkaido UniversityTetsuya Ishii, PhD
Professor of Office of Health and Safety at Hokkaido University
Professor of Office of Health and Safety at Hokkaido University
-
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest UniversityAna Iltis, PhD
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest University
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest University
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Canada Research Chair in Neuroethics; President International Neuroethics SocietyJudy Illes, PhD
Canada Research Chair in Neuroethics; President International Neuroethics Society
Canada Research Chair in Neuroethics; President International Neuroethics Society
-
Director, South Asian Studies Program, Associate Professor of Sociology at University of MissouriAmit Prasad, PhD
Director, South Asian Studies Program, Associate Professor of Sociology at University of Missouri
Director, South Asian Studies Program, Associate Professor of Sociology at University of Missouri
-
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of MedicinePaul Knoepfler, PhD
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of Medicine
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of Medicine
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Research Director, Canadian Institute for Genomics and SocietyKalina Kamenova, PhD
Research Director, Canadian Institute for Genomics and Society
Research Director, Canadian Institute for Genomics and Society
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Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical CenterJaime Imitola, MD
Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical Center
Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical Center
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Physician and Medical Educator, NUI Galway, IrelandGerard Flaherty, MD
Physician and Medical Educator, NUI Galway, Ireland
Physician and Medical Educator, NUI Galway, Ireland
-
Lead Moderators
-
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.Omar Abudayyeh
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.
-
Moderators
-
Fourth Year Biology Student at Trent UniversityElyse Wakeford
Fourth Year Biology Student at Trent University
Fourth Year Biology Student at Trent University
-
Student at Trent UniversityGordon Martin
Student at Trent University
Student at Trent University
-
Trent University Philosophy Major
