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Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fan
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of Medicine
Professor of Office of Health and Safety at Hokkaido University
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest University
Canada Research Chair in Neuroethics; President International Neuroethics Society
Director, South Asian Studies Program, Associate Professor of Sociology at University of Missouri
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of Medicine
Research Director, Canadian Institute for Genomics and Society
Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical Center
Physician and Medical Educator, NUI Galway, Ireland
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.
Fourth Year Biology Student at Trent University
Student at Trent University
Trent University Philosophy Major
PERSPECTIVE
On the Road (to a Cure?) — Stem-Cell Tourism and Lessons for Gene Editing
R. Alta Charo, J.D..
N Engl J Med 2016; 374: | February 10, 2016 | DOI: 10.1056/NEJMp1600891
BACKGROUND
In 2011, football quarterback Peyton Manning went on the road to seek out stem-cell “treatment” for his neck. He wasn’t alone: many high-profile athletes and desperate (but less famous) patients left the United States seeking interventions available in countries with less rigorous regulation. They didn’t necessarily know what kind of cells they were getting, whether there was any evidence the intervention worked, or whether anyone understood the risks they were taking. So why did they do it?
Given the stream of stories about amazing potential and early breakthroughs in laboratory and animal models, gene editing may trigger the next wave of medical tourism. We should take steps now to guard against future gene-editing tourism by developing professional norms, fostering collaboration among national regulatory bodies, partnering with patient advocacy groups to develop accurate, credible information sources, and looking for opportunities to devise responsible research protocols and patient monitoring measures.
Originally Appeared in The New England Journal of Medicine on February 10, 2016.
Bioethicist and science policy specialist; Star Trek, poker and Jane Austen fan
Associate Professor of Bioethics and Philosophy at Case Western Reserve University School of Medicine
Professor of Office of Health and Safety at Hokkaido University
Director, Center for Bioethics, Health and Society and Professor of Philosophy at Wake Forest University
Canada Research Chair in Neuroethics; President International Neuroethics Society
Director, South Asian Studies Program, Associate Professor of Sociology at University of Missouri
Associate Professor, Faculty member of the Genome Center, Comprehensive Cancer Center, Institute for Regenerative Cures, and Institute for Pediatric Regenerative Medicine at UC Davis School of Medicine
Research Director, Canadian Institute for Genomics and Society
Director, Neural Stem Cell Laboratory; Assistant Professor in the Department of Neurology and Neuroscience at The Ohio State University Wexner Medical Center
Physician and Medical Educator, NUI Galway, Ireland
Harvard MD/PhD Student; Lab of Feng Zhang at the Broad Institute of MIT and Harvard; Co-founder of Harvard Medical Student Review; Data, bioengineering, and entrepreneurship geek.
Fourth Year Biology Student at Trent University
Student at Trent University
Trent University Philosophy Major