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Director, G2P Research Program
CMO of 23andMe
Associate Director for Translational Research, Yale
Kimberly V. Talley Chair of Genetics, Professor of Pediatrics, University of Oklahoma
Director, Adult Clinical Genetics, Dept. of Medicine, UC-Denver
President of the American College of Medical Genetics and Genomics
Director of Medical Affairs, 23andMe
Internist, Geneticist, Executive Committee Member of Johns Hopkins University/NIH Genetic Counseling Training Program
CEO of Claritas Genomics
Clinical Cardiologist & Human Geneticist
Physician-in-Chief, Dept of Med, MGH
Professor of Genetics and Medicine at UNC-Chapel Hill
Medical & Scientific Advisory Board Member of Global Genes
Chief Scientific Offficer, Analytical Technologies at Thermo Fisher Scientific
Professor & Chief Maternal-Fetal Medicine Medicine, UF ObGyn
Ass. Professor of Pediatrics, Div. Clinical Genetics, Dept. of Pediatrics, Columbia University
Healthcare Consultant at Maine Medical Center
Assist. Prof. Clinical Medicine, Human & Molecular Genetics, Nationwide Children's Hospital
Chair, Department of Genetic, University of Alabama at Birmingham
Medical Director at Claritas Genomics
Medical Student at University of Pittsburgh School of Medicine
PhD student in human genetics at HMS/BCH/Broad
Medical Geneticist, Mount Sinai
Clinical informatician at VA Boston
In their recent publication, "GINA, Genetic Discrimination, and Genomic Medicine," that was published on January 29, 2015 in The New England Journal of Medicine, the authors reflect on GINA, the Genetic Information Nondiscrimination Act that was signed into law in 2008.
The authors tell us that GINA was designed “to fully protect the public from discrimination” and also to “allay their concerns about the potential for discrimination, thereby allowing individuals to take advantage of genetic testing, technologies, research and new therapies.”
Why was this law passed to prevent discrimination in a group that had no well-documented history of widespread discrimination? Where are the potentials for genetic discrimination? Did the law work in calming fears of discrimination? Does the American public even know about GINA to have any affect on fears? Since GINA doesn't cover life, disability, or long-term care insurance discrimination, are we currently, or will we, see discrimination in these areas? What type of employment discrimination might some people face?
But the biggest question lies in understanding what is genetic risk? How much does it truly predict the future? How much will this be ameliorated by diet, exercise, pharmaceuticals, and gene therapy? What does genetic risk mean if all of medicine is moving toward genomic, personalized medicine?
Director, G2P Research Program
CMO of 23andMe
Associate Director for Translational Research, Yale
Kimberly V. Talley Chair of Genetics, Professor of Pediatrics, University of Oklahoma
Director, Adult Clinical Genetics, Dept. of Medicine, UC-Denver
President of the American College of Medical Genetics and Genomics
Director of Medical Affairs, 23andMe
Internist, Geneticist, Executive Committee Member of Johns Hopkins University/NIH Genetic Counseling Training Program
CEO of Claritas Genomics
Clinical Cardiologist & Human Geneticist
Physician-in-Chief, Dept of Med, MGH
Professor of Genetics and Medicine at UNC-Chapel Hill
Medical & Scientific Advisory Board Member of Global Genes
Chief Scientific Offficer, Analytical Technologies at Thermo Fisher Scientific
Professor & Chief Maternal-Fetal Medicine Medicine, UF ObGyn
Ass. Professor of Pediatrics, Div. Clinical Genetics, Dept. of Pediatrics, Columbia University
Healthcare Consultant at Maine Medical Center
Assist. Prof. Clinical Medicine, Human & Molecular Genetics, Nationwide Children's Hospital
Chair, Department of Genetic, University of Alabama at Birmingham
Medical Director at Claritas Genomics
Medical Student at University of Pittsburgh School of Medicine
PhD student in human genetics at HMS/BCH/Broad
Medical Geneticist, Mount Sinai
Clinical informatician at VA Boston