Experts
    • Critical Care Medicine
    • Director of Duke Program to Support People and Enhance Recovery, Co-Director of Medical ICU, Associate Professor of Medicine at Duke University Health System

    Christopher Cox is an Associate Professor of Medicine at Duke University.  He also directs the Duke Program to Support People and Enhance Recovery (ProSPER) and is co-director of the Duke medical ICU

    • Arline H. and Curtis F. Garvin Professor of Nursing Excellence, Assistant Dean for Research at the Frances Payne Bolton School of Nursing at Case Western Reserve University

    Dr. Sara L. Douglas is the Arline H. & Curtis F. Garvin Professor of Nursing Excellence and Assistant Dean for Research at the Frances Payne Bolton School of Nursing at Case Western Reserve University. She also holds a secondary appointment at the Seidman Cancer Center and Case Western Reserve University School of Medicine. Dr. Douglas’s research focus is upon outcomes for caregivers of patients with life-limiting illnesses such as chronic critical illness and advanced cancer. Her research was some of the first to identify the short and long-term impact of chronic critical illness upon caregivers. She has also conducted research examining end-of-life decision making for patients with chronic critical illness and aggressiveness of care at end-of-life for patients with advanced cancer. Dr. Douglas has been a Principal or Co-Investigator for >20 NIH funded studies over the past 25 years and is currently the PI of two RO1 investigations that focus upon caregivers of patients with advanced cancer. Dr. Douglas has authored or co-authored >50 peer-reviewed publications mostly concerning chronically critically ill patients and their caregivers as well as patients with advanced cancer and their caregivers. Dr. Douglas continues to serve as a grant reviewer for National Institutes of Nursing Research and the Patient-Centered Outcomes Research Institute.

  • Zhan Liang is an Assistant Professor in the College of Nursing at the University of South Florida. Her research interests include:

    * Critically ill adults

    * Symptoms management

    * Supportive and palliative care

    * Non-pharmacological symptom management

    Her research focuses on symptom management for mechanically ventilated critically ill patients. Her current study tests the effects of music intervention on physiologic and psychological measures and weaning time in mechanically ventilated patients admitted to a long term acute care hospital.

    Director of Research, Cancer Support Community 
    Director of Research, Cancer Support Community 
    • Director of Research, Cancer Support Community and Adjunct Professor, Community and Global Public Health Program at Arcadia University

    Margaret Longacre, Ph.D., has a doctoral degree in Health Policy from the University of the Sciences (Philadelphia, PA). Dr. Longacre also received an M.S. in Health Education from Arcadia University and a B.A. in Psychology from Wake Forest University. Her doctoral dissertation and subsequent research interest has revolved around informal or family caregiving. At the Cancer Support Community, Dr. Longacre leads several caregiving research initiatives, including 1) the Cancer Experience Registry: Caregivers to understand the social and emotional experiences of informal caregivers, and 2) a study to develop and validate CancerSupportSource-Caregivers, a distress screening and referral program for caregivers for persons with cancer. Prior to joining the Cancer Support Community, Dr. Longacre worked at Fox Chase Cancer Center (FCCC) under the direction and mentoring of Dr. Carolyn Fang, Co-Leader of the Cancer Prevention and Control program. While at FCCC, Dr. Longacre initiated a study to identify the information needs and psychosocial experiences of family caregivers for head and neck cancer patients. She has several publications within this area of research, including demonstrating relevance to broader health system and policy issues. Dr. Longacre is also an Adjunct Professor in the Community and Global Public Health Program at Arcadia University.

    • Associate Professor/Scientific Director for the Patient Centered Outcomes Program at Mayo Clinic

    Joan M. Griffin, Ph.D. is an Associate Professor of Health Sciences Research at the Mayo Clinic. She is also the Scientific Director for the Care Experiences Program at Mayo’s Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, a research program dedicated to improving patient and family caregiver health outcomes by developing, testing, and implementing efficient, equitable, and effective strategies to transform healthcare practice. Dr. Griffin has a long-time research interest in the health effects of family caregiving on both caregiver and care recipient health. Using both qualitative and quantitative methods, she studies how to reduce the physical and mental health risks faced by caregivers providing care and strategies to engage caregivers in their loved one’s health care in order to improve care recipients’ transitions in care, assure their safety, and optimize their health outcomes and quality of life. Her work has focused on the impact of caring for people with cancer, traumatic brain injury, dementia and heart failure.

    • Epidemiologist, Program Director in the Outcomes Research Branch at National Cancer Institute, National Institutes of Health

    Dr. Erin Kent is an Epidemiologist and Program Director in the Outcomes Research Branch at the National Cancer Institute. Dr. Kent manages and conducts patient-centered cancer outcomes and care delivery research, with a particular interest in informal cancer caregiving, social determinants of cancer control, and integrating mixed methods into healthcare delivery research. Her primary responsibilities include serving as scientific lead for SEER cancer registry data linkages with national surveys that assess health status, quality of life, and experiences with care, including the SEER-MHOS (Medicare Health Outcomes Survey) and SEER-CAHPS (Consumer Assessment of Healthcare Providers and Systems). Previously Dr. Kent served as an NCI Cancer Prevention Fellow, and she earned her doctorate from the School of Social Ecology at University of California, Irvine in 2010.